Pain Clinical Trial
The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview (SCPBI), which can be used in the clinical and/or research settings to assess the impact of pain on children with sickle cell disease.
| Status | Completed |
| Enrollment | 131 |
| Est. completion date | December 2012 |
| Est. primary completion date | December 2012 |
| Accepts healthy volunteers | No |
| Gender | Both |
| Age group | 7 Years to 21 Years |
| Eligibility |
Inclusion Criteria: - Documented sickle cell disease - 7 years old or greater - Primary caregiver present at the first visit for children < 18 years of age Exclusion Criteria: - Primary language spoken other than English - Patient is in acute pain episode at time of initial visit |
Observational Model: Cohort, Time Perspective: Prospective
| Country | Name | City | State |
|---|---|---|---|
| United States | Connecticut Children's Medical Center | Hartford | Connecticut |
| Lead Sponsor | Collaborator |
|---|---|
| Connecticut Children's Medical Center |
United States,
| Type | Measure | Description | Time frame | Safety issue |
|---|---|---|---|---|
| Primary | Correlation with validated measures of pain interference, function, quality of life, and mood. | Quarterly | No |
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