Von Hippel Lindau Disease Clinical Trial
Official title:
Data Collection Protocol for Patients With Von Hippel Lindau Disease
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Primary Objectives: - Obtain prospective and retrospective data on lesion development, surgical history and systemic therapy use in patients with vHL disease - Assess genotype-phenotype correlation between VHL mutation type and patterns of lesion development - Assess genotype-phenotype correlation for response to belzutifan in an organ-specific manner Secondary Objectives: --Obtain quality of life data in patients with vHL disease ;
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Completed |
NCT00470977 -
Treatment of Exudative and Vasogenic Chorioretinal Diseases Including Variants of AMD and Other CNV Related Maculopathy
|
Phase 1/Phase 2 | |
| Terminated |
NCT00001803 -
Von Hippel-Lindau Disease Genetic Epidemiology Study
|
||
| Enrolling by invitation |
NCT00102544 -
Use of Tracking Devices to Locate Abnormalities During Invasive Procedures
|
N/A | |
| Terminated |
NCT01015300 -
Bevacizumab (Avastin) in Unresectable/Recurrent Hemangioblastoma From Von-Hippel-Lindau Disease
|
Phase 0 |