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Transthyretin Amyloidosis Outcome Survey (THAOS) — THAOS  

Transthyretin Amyloidosis Clinical Trial

Official title:
Transthyretin Amyloidosis Outcomes Survey (THAOS): A Global, Multi-Center, Longitudinal, Observational Survey of Patients With Documented Transthyretin Gene Mutations or Wild-Type Transthyretin Amyloidosis.

Clinical Trial Summary

THAOS is a global, multi-center, longitudinal observational survey open to all patients with transthyretin amyloidosis (ATTR), including ATTR-PN (polyneuropathy), ATTR-CM (cardiomyopathy) and wild-type ATTR-CM. It is open-ended with a minimum duration of 10 years. Patients will be followed as long as they are able to participate. The principal aims of this outcome survey are to better understand and characterize the natural history of the disease by studying a large and heterogenous patient population. Survey data may be used to develop new treatment guidelines and recommendations, and to inform and educate clinicians about the management of this disease.

Clinical Trial Description

n/a NA ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT00628745
Study type Observational
Source Pfizer
Contact
Status Completed
Phase
Start date January 4, 2008
Completion date June 16, 2023
View Details
See also
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