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Tibial Dysplasia clinical trials

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NCT ID: NCT00303368 Completed - Clinical trials for Neurofibromatosis Type 1

Neurofibromatosis Type 1 (NF1) and Tibial Dysplasia

NF1TD
Start date: March 2004
Phase:
Study type: Observational

The study is a multicenter four-year outcome study of the natural history of tibial dysplasia in patients with NF1 and selected patients without NF1. We will obtain information on the natural history, burden, functional and health status, health-related quality of life, and surgical interventions/outcomes of tibial dysplasia. The project will also establish a Core Facility (NOCF) for tissue samples for future studies.