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NCT ID: NCT02378805 Recruiting - Alport Syndrome Clinical Trials

European Alport Therapy Registry - European Initiative Towards Delaying Renal Failure in Alport Syndrome

Start date: July 1995
Phase:
Study type: Observational [Patient Registry]

The hereditary type IV collagen disease Alport syndrome inevitably leads to end-stage renal disease. Currently there are no therapies known to improve outcome. Our non-interventional, observational study investigates, if medications such as ACE-inhibitors can (1) delay time to dialysis and (2) improve life-expectancy within three generations of Alport-families in Europe.