Small Intestine Disease Clinical Trial
Official title:
Qualitative Assessment of the Needs and Knowledge of Patients With Chronic Intestinal Failure of Their Disease as Well as Those of Their Practitioners
The SBS NEEDS Study is a qualitative transversal study aiming to describe and understand the
needs and knowledge of patients with Chronic Intestinal Failure as well as the
representations of their practitioners
Chronic Intestinal Failure (CIF) is the long-lasting reduction of gut function, below the
minimum necessary for the absorption of macronutrients and/or water and electrolytes, such
that intravenous supplementation is required to maintain health and/or growth. CIF is the
rarest organ failure. Home parenteral nutrition (HPN) is the primary treatment for CIF.
Semi-structured interviews will be conducted with patients in two nutrition unit and
specialized in the small bowel diseases in two French region. 20 situations will be included.
After analysing the data of the individual interviews, focus groups will be conducted with
health professionals from an accredited home parenteral nutrition department.
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