Sarcoma Clinical Trial
Official title:
A Qualitative Case Study of the Experiences of Children With Cancer as They Learn About Their Diagnosis and Treatment
Thousands of children are diagnosed with cancer each year, many of whom will achieve long
term survival due to advances in treatments and technologies. However, when a child is first
diagnosed, they are confronted with a wealth of new and unfamiliar medical information that
they must integrate in order to understand their diagnosis and treatment plan. Little is yet
known about how children with cancer experience learning about their diagnosis and treatment
in the hospital setting, or the individuals and materials that may help to facilitate the
child's developing understanding. This information could help to identify or guide
educational and supportive child life interventions to help children with cancer better
understand their illness and its treatment.
This observational study will collect data about how children currently learn about their
cancer diagnosis and treatment in the hospital setting. The interventions used do not seek
to change the health outcomes of the participants in this study. The observational data
collected may serve to improve how future patients learn about their cancer-related
diagnosis.
This is a longitudinal qualitative case study, and no randomized interventions will be used.
Instead, participants will complete two interview sessions, three guided activities, and
observations with the primary investigator to explore their experiences of learning about
their diagnosis and treatment in the hospital setting.
PRIMARY OBJECTIVE:
- The primary objective of this qualitative case study is to describe the ways in which
children with cancer learn about their cancer diagnosis and treatment in the hospital
setting.
;
Observational Model: Case-Only, Time Perspective: Prospective
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