| Eligibility |
INCLUSION CRITERIA
1. PALLIATIVE CARE UNITS (USP) 35 palliative care unit will be drawn at random among the
164 French palliative care unit (www.sfap.org). In the event of refusal of
participation, the drawing of lots will continue until 35 participating palliative
care unit are obtained. The inclusion criteria for palliative care units were
determined from the survey carried out in 2013 by the National End of Life Observatory
on palliative care units in France. In order for there to be representativeness, the
status of the palliative care unit will be taken into account from the national
University Hospital (CHU) distribution, excluding CHU in the public sector, private
non-profit sector, private for-profit sector. Thus, out of the 35 palliative care
units: 7 will be within CHU, 16 will be outside CHU in the public sector, 7 will be in
the private non-profit sector, and 5 in the private for-profit sector (criteria
determined from the survey of the National End of Life Observatory in 2013) by
ensuring that there are no more than 3 palliative care units in the same department
(this in order to avoid that a geographical territory is over-represented, which would
be liable to bias the results).
In the event of refusal of a palliative care units or of inadequacy of the criteria,
the drawing of lots will be continued until 35 participating USPs are obtained.
Each team of these palliative care units must allow the participation of 7 experts: 1
for each group of experts, i.e. 5 socio-health professionals working in all the
palliative care units (doctors, psychologists, nursing assistants, nurses,
socio-educational assistant) as well as the coordinator of support volunteers and a
relative by palliative care unit.
2. THE EXPERTS
6 volunteer experts who will participate in the panel of voters: a doctor (group 1), an IDE
( group 2), an AS (group 3), a psychologist (group 4), an ASE (group 5), a volunteer
support coordinator (group 6) . A relative (group 7) will be done.
The inclusion criteria:
- For professionals, at least 3 years of seniority in palliative care unit will be
required, including 1 year in the participating palliative care unit.
- For volunteers, at least 3 years of seniority in palliative care unit will be
required, including 1 year in the participating palliative care unit. The
representative participating in the study will preferably be the volunteer
coordinator.
- For relatives Relative of a patient who died in the palliative care unit at least 6
months ago Person to trust or to prevent if not designated Relative understanding and
speaking sufficient French Relative not a health professional
Relative who visited the palliative care unit during the last 3 days of the patient's life
and who met the care team:
- Traceability of the arrival of the loved one in the last 2/3 days of the patient's
hospitalization
- Traceability of a meeting of the loved one with a member of the team over the last 3
days of his hospitalization or verification during telephone contact with the loved
one after drawing lots Relative with an email address (to be verified during telephone
contact with the loved one after drawing lots)
NO-INCLUSION AND EXCLUSION CRITERIA
1. PALLIATIVE CARE UNITS Palliative care unit who could not be represented by the 7
experts required
- Have participated in the PROPAGE 1 study
- Have taken part in the questionnaire test.
2. THE EXPERTS Palliative care unit Experts: Anyone with less than 3 years of palliative
care unit experience.
Relatives:
Relative of a patient who died in the palliative care unit less than 6 months ago Relative
not understanding and not speaking French enough Relative being a health professional
Relative who has not been to the palliative care unit in the last 3 days of the patient's
life Relative who does not have an email address (to be checked during telephone contact
with the loved one after drawing lots).
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