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Polycystic Liver Disease Registry (UK) — PLD  

Polycystic Liver Disease Clinical Trial

Official title:
Polycystic Liver Disease Registry (UK)

Clinical Trial Summary

Multicentre, observational registry studying the natural course of polycystic liver disease.

Clinical Trial Description

The Polycystic Liver Disease (PLD) registry (UK) is the UK specific part of an international, multicentre, observational registry. The overall international PLD registry is led by Radboud University Medical Center, Nijmegan, Netherlands. Note- please direct any queries about the international registry to the team at Radboud University Medical Center. All patients with Polycystic Kidney Disease (PKD) with PLD or patients with Isolated (without PKD) Polycystic Liver Disease are eligible for inclusion (>10 liver cysts). Data will be collected prospectively and retrospectively including a specific validated PLD questionnaire (PLD-Q). This registry provides us insight in patient characteristics, risk factors, symptoms, quality of life and treatment strategies in the biggest international PLD cohort so far. Results of this registry will be published and shared at national and international congresses. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT04645251
Study type Observational [Patient Registry]
Source Portsmouth Hospitals NHS Trust
Contact Richard Aspinall, BSc, MBChB, PhD
Phone 02392286255
Email richard.aspinall@porthosp.nhs.uk
Status Recruiting
Phase
Start date January 21, 2021
Completion date December 1, 2030
View Details
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