Clinical trial NCT05214352 - References

Patient Participation — Use of Involvement Matrix in Cerebral Palsy Into Spain and Brazil

Citation(s)

•   Alderson H, Brown R, Smart D, Lingam R, Dovey-Pearce G
  'You've come to children that are in care and given us the opportunity to get our voices heard': The journey of looked after children and researchers in developing a Patient and Public Involvement gr
•   Boland L, Graham ID, Légaré F, Lewis K, Jull J, Shephard A, Lawson ML, Davis A, Yameogo A, Stacey D
  Barriers and facilitators of pediatric shared decision-making: a systematic review. Implement Sci. 2019 Jan 18;14(1):7. doi: 10.1186/s13012-018-0851-5.
•   Costello W, Dorris E
  Laying the groundwork: Building relationships for public and patient involvement in pre-clinical paediatric research. Health Expect. 2020 Feb;23(1):96-105. doi: 10.1111/hex.12972. Epub 2019 Oct 18.
•   Forsyth F, Saunders C, Elmer A, Badger S
  'A group of totally awesome people who do stuff' - a qualitative descriptive study of a children and young people's patient and public involvement endeavour. Res Involv Engagem. 2019 Mar 12;5:13. doi: 10.1186/s409
•   Mitchell SJ, Slowther AM, Coad J, Akhtar S, Hyde E, Khan D, Dale J
  Ethics and patient and public involvement with children and young people. Arch Dis Child Educ Pract Ed. 2019 Aug;104(4):195-200. doi: 10.1136/archdischild-2017-313480. Epub 2018 Feb 9.
•   Smits DW, van Meeteren K, Klem M, Alsem M, Ketelaar M
  Designing a tool to support patient and public involvement in research projects: the Involvement Matrix. Res Involv Engagem. 2020 Jun 16;6:30. doi: 10.1186/s40900-020-00188-4. eCollection 2020.
•   van Schelven F, van der Meulen E, Kroeze N, Ketelaar M, Boeije H
  Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program. Res Involv Engagem. 2020 Sep 30;6:59. doi: 10

Using the Involvement Matrix for the Implication of Young People With Cerebral Palsy in the Elaboration of an Intervention Program to Encourage Participation in the Community.

Details for clinical trial NCT05214352