Parents of Children With Cancer Clinical Trial
Official title:
Enhancing the Resilience of Parents by Understanding Their Perceptions, Behaviour, Attitudes, and Experiences Related to Cancer and Its Treatment of Their Child
This study is to describe the psychosocial well-being and quality of life of Hong Kong Chinese parents of children with cancer with the aim at understanding the needs and concerns of parents, including their perceptions, behaviour, attitudes, and experiences related to cancer and its treatment of their child.
Advances in diagnostic techniques and cancer treatments have yielded remarkable increases in
the overall survival rates of children with cancer. Inevitably, however, cancer and its
treatments may also have long-term effects on the physical and psychological well-being of
children with cancer,
Previous studies revealed that parents play a pivotal role in encouraging their child with
cancer to engage in healthy behaviours. It was shown that Chinese parental psychological
behaviour and control may influence the psychological well-being of their children.
Therefore, a thorough understanding the needs and concerns of Chinese parents, including
their perceptions, behaviour, attitudes, and experiences related to the illness of their
child is essential to facilitate them to empower their child to fight at every step of the
long and difficult cancer journey.
On the other hand, the diagnosis of cancer not only undermines children themselves in
physical and psychological, but also it brings overwhelming psychological distress for these
children's parents. An increasing number of studies have examined patients' resilience in
adaptation to cancer. Assessing resilience in parents of children with cancer is crucial for
a thorough understanding of their responses to stress and adversity, which is an essential
prerequisite for the design of an appropriate psychological intervention to enhance their
resilience and foster the development of their coping mechanisms and positive psychological
well-being. Nevertheless, the resilience levels and its influencing factors among parents of
children with cancer in Hong Kong have never been studied.. Further qualitative and
quantitative analyses are necessary to thoroughly explore the relationships between
resilience and its influencing factors from a culturally specific perspective, with the goal
of developing interventions to promote resilience that are applicable to the Hong Kong
Chinese population.
A sequential mixed methods design will be used with a quantitative study (Phase I) will be
first conducted and followed by a qualitative study (Phase II). The reason for that the
quantitative findings will provide a general understanding of the psychosocial well-being and
quality of life of Hong Kong Chinese parents of children with cancer. The qualitative
findings and the analysis will help to explain the quantitative findings by exploring the
perceptions, behaviour, attitudes, and experiences related to cancer and its treatment of
their child.
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