Parenting Clinical Trial
Official title:
A Single Case Experimental Design Study of an Online Mindful-parenting Intervention for Parents of Children Living With a Visible Difference
Some parents of children living with a visible difference can experience heightened stress due to the associated challenges of this. Parent's views of the child's visible difference and their responses to the child are important. Mindful parenting approaches have been found to reduce stress or distress for parents of children with disabilities, physical health problems and skin conditions. This study will be completed with a small number of participants (around six to 12). Participants will be parents or carers of a child living with a visible difference aged four to 16 years, who are experiencing stress. Parents or carers will complete an online mindful parenting intervention (called Two Hearts) including video content, audio files and a workbook, over six weeks. Over the twelve-week study period participants will also provide the following information which will be compared over time: - Complete four group support sessions during the intervention via videoconferencing - Complete questionnaires at four timepoints - Provide information about their use of the intervention materials and home practice weekly - Answer two questions daily via text message about parenting stress levels We hope to learn about the initial effects of the mindful parenting programme for parents or carers of children living with a visible difference. We also hope to learn whether parents or carers find completing an online programme possible and practical. Finally, we hope to learn what parents' or carers' views are of the online programme and whether this type of intervention in online format would be helpful for other parents or carers.
Status | Recruiting |
Enrollment | 12 |
Est. completion date | April 14, 2023 |
Est. primary completion date | March 28, 2023 |
Accepts healthy volunteers | Accepts Healthy Volunteers |
Gender | All |
Age group | 16 Years and older |
Eligibility | Inclusion Criteria: - Parents aged over 16 years, of children aged between four (4)-16 years living with a visible difference - All types and aetiologies of child visible differences including any scarring, condition, disability, or mark that affects a person's appearance, with confirmation via self-report - Parent experiencing self-reported stress associated with the child's visible difference - Able to communicate in verbal and written English - Access to a computer/tablet with an active internet connection Exclusion Criteria: - Parent currently accessing psychological therapy for their own wellbeing, including parenting programmes - Parent experiencing active thoughts of suicide or self-injury - Parent experienced a psychotic episode or engaged in deliberate self-injury over the past year - Parent commenced medications for mood in the last two months - Parent previously accessed a mindful parenting intervention - Child currently in an acute phase following a physical injury - Only one parent or carer per household can take part |
Country | Name | City | State |
---|---|---|---|
United Kingdom | Cardiff University | Cardiff |
Lead Sponsor | Collaborator |
---|---|
Cardiff University | University of Canterbury |
United Kingdom,
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* Note: There are 11 references in all — Click here to view all references
Type | Measure | Description | Time frame | Safety issue |
---|---|---|---|---|
Other | Participant evaluation of the Mindful Parenting Programme | An evaluation questionnaire will be used to assess parents' experiences of the Two Hearts Mindful Parenting intervention based on those developed by previous authors. Questions include: "Do you feel you've got something of lasting value of importance because of taking the training?", adherence to home practice "On average, how many times a week did you practice the meditation exercises during the course?", and perceived importance/ value of specific elements of the intervention "body scan". | Follow up (week 12) | |
Other | Exit interview to gather feedback on participant experience of participation in the study | Questions will include: "What was your experience of the video content of the intervention?", "What was your experience of the support sessions?", "Are there any practices in you plan to take forwards beyond the end of the study?", "Have you noticed any changes in their self-compassion?", and "What changes, if any, have you noticed in the way you interact with your child?". | Follow up (week 12) | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 3 | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 4 | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 5 | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 6 | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 7 | |
Other | Levels of participant engagement with intervention materials and home practice exercises | Adherence and attrition will be recorded. Feedback will be collected from participants regarding levels of engagement with the intervention and mindfulness home practice. Participants will provide this information via text message giving the number of minutes spent on each reading intervention materials and engaging with home practice. | Week 8 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 1 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 2 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 3 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 4 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 5 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 6 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 7 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 8 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 9 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 10 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 11 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 12 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 13 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 14 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 15 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 16 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 17 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 18 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 19 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 20 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 21 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 22 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 23 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 24 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 25 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 26 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 27 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 28 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 29 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 30 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 31 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 32 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 33 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 34 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 35 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 36 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 37 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 38 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 39 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 40 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 41 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 42 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 43 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 44 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 45 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 46 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 47 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 48 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 49 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 50 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 51 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 52 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 53 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 54 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 55 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 56 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 57 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 58 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 59 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 60 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 61 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 62 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 63 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 64 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 65 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 66 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 67 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 68 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 69 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 70 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 71 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 72 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 73 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 74 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 75 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 76 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 77 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 78 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 79 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 80 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 81 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 82 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 83 | |
Primary | Parenting Stress (unique to each participant) | Parents will identify two targets for desired change around parenting stress related to the child's visible difference. It is intended that participants will identify one target area for improvement (positive target) and one for reduction (negative target). Questions will be rated on a scale of 0 (not at all) to 100 (extremely). Idiographic measures will be completed via text message. Text messages will be sent via a secure online provider (PageOne's Janet txt). Example targets include: be more present in interactions with my child and be grumpy or respond abruptly with my child less. | Day 84 | |
Secondary | Parenting Stress Index 4th Edition Short Form | Measure of Parenting Stress with total stress reported on a scale of 36-180 and higher scores being indicative of higher levels of stress. | Baseline | |
Secondary | Parenting Stress Index 4th Edition Short Form | Measure of Parenting Stress with total stress reported on a scale of 36-180 and higher scores being indicative of higher levels of stress. | Pre-intervention (week 2) | |
Secondary | Parenting Stress Index 4th Edition Short Form | Measure of Parenting Stress with total stress reported on a scale of 36-180 and higher scores being indicative of higher levels of stress. | Post-intervention (week 8) | |
Secondary | Parenting Stress Index 4th Edition Short Form | Measure of Parenting Stress with total stress reported on a scale of 36-180 and higher scores being indicative of higher levels of stress. | Follow up (week 12) | |
Secondary | Interpersonal Mindfulness in Parenting scale | Measure of Mindful Parenting measured on a scale of 31-155 for total mindfulness with higher scores indicative of higher levels of mindful parenting. | Baseline | |
Secondary | Interpersonal Mindfulness in Parenting scale | Measure of Mindful Parenting measured on a scale of 31-155 for total mindfulness with higher scores indicative of higher levels of mindful parenting. | Pre-intervention (week 2) | |
Secondary | Interpersonal Mindfulness in Parenting scale | Measure of Mindful Parenting measured on a scale of 31-155 for total mindfulness with higher scores indicative of higher levels of mindful parenting. | Post-intervention (week 8) | |
Secondary | Interpersonal Mindfulness in Parenting scale | Measure of Mindful Parenting measured on a scale of 31-155 for total mindfulness with higher scores indicative of higher levels of mindful parenting. | Follow up (week 12) | |
Secondary | Strengths and Difficulties questionnaire (SDQ) | Parent reported child wellbeing measure with scores ranging from 0-40 with higher scores being indicative of higher levels of difficulty on all subscales other than the prosocial subscale. | Baseline | |
Secondary | Strengths and Difficulties questionnaire (SDQ) | Parent reported child wellbeing measure with scores ranging from 0-40 with higher scores being indicative of higher levels of difficulty on all subscales other than the prosocial subscale. | Pre-intervention (week 2) | |
Secondary | Strengths and Difficulties questionnaire (SDQ) | Parent reported child wellbeing measure with scores ranging from 0-40 with higher scores being indicative of higher levels of difficulty on all subscales other than the prosocial subscale. | Post-intervention (week 8) | |
Secondary | Strengths and Difficulties questionnaire (SDQ) | Parent reported child wellbeing measure with scores ranging from 0-40 with higher scores being indicative of higher levels of difficulty on all subscales other than the prosocial subscale. | Follow up (week 12) |
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