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The Right to be Forgotten in the AYA Population: Patients' Experience and Perspectives (Diritto All'Oblio)

Oncologic Disorders Clinical Trial

Official title:
The Right to be Forgotten in the AYA Population: Patients' Experience and Perspectives (Diritto All'Oblio)

Clinical Trial Summary

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on: - awareness (knowledge of the issue); - significance attributed and subjective perception; - implications/fallouts perceived or experienced on one's present and future history.

Clinical Trial Description

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on: - awareness (knowledge of the issue); - significance attributed and subjective perception; - implications/fallouts perceived or experienced on one's present and future history. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT06229535
Study type Observational
Source Centro di Riferimento Oncologico - Aviano
Contact Maurizio Mascarin, MD
Phone 0434 659 536
Email mascarin@cro.it
Status Recruiting
Phase
Start date November 16, 2023
Completion date November 16, 2024
View Details
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