Swedish Palliative Care Guide (S-PCG) at Residential Facilities

Status Enrolling by invitation

Clinical Trial Summary

Palliative care aims to improve the quality of life for patients and families who are affected life-threatening, incurable disease. The care should be person-centred, but it is not entirely clear how this is best achieved. The Institute for Palliative Care, Lund, has developed the Swedish Palliative Care Guide (S-PCG) which support for a person-centred approach throughout the palliative care process. The aim of this study is to implement the Swedish Palliative Care Guide (S-PCG) part 2 at Residential Facilities and evaluate functionality, effect and patient benefit in clinical use.

Clinical Trial Description

The concept of palliative care has changed over time and is not longer reserved for patients in the dying phase, on the contrary more and more studies show that early integration of palliative care and disease-specific care produce positive results. Specifically, palliative care is about prevent and alleviate suffering by early detection of symptoms and treatment of physical, psychological, social and existential problems. In order to provide the best care, a holistic approach is required that takes up what is important right now and not focus on individual diagnoses. The Swedish Palliative Care Guide (S-PCG) aims to support for a person-centred approach throughout the palliative care process. The purpose of S-PCG is to provide increased security and quality of life for patients and their relatives by identifying needs, make sure that these are addressed and followed up. S-PCG can be used cross-professionally and provides support for coordination and communication in care transitions, regardless of diagnosis or form of care. The research questions for this study are: 1. Has people living at Residential Facilities to a greater extent treatment restrictions, a stated plan in case of deterioration and information to relatives documented in the medical record after S-PCG was implemented compared to people who were cared for, at the same Residential Facilities, before S-PCG was implemented? 2. Do patients cared for after S-PCG was implemented feel more involved in decisions about their care and do they feel more safe to discuss their thoughts about the end of life (if they so wish)? ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT06431659
Study type	Observational
Source	Region Skane
Contact
Status	Enrolling by invitation
Phase
Start date	May 20, 2024
Completion date	May 3, 2027

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Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.

Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.