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New-borns Screening clinical trials

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NCT ID: NCT03119922 Completed - Sickle Cell Disease Clinical Trials

Quality of Care of Children With Sickle Cell Disease (SCD) Screened at Birth in France

EVADREP
Start date: March 2014
Phase: N/A
Study type: Observational

The main objective of this study is to evaluate at the national level (France) - the early healthcare practices for children with sickle cell disease screened at birth, - the adequacy of theses practices with the national recommendations, - their variability over time and according the characteristics of treatment centers. Will be studied in particular the diffusion of the latest preventive measures (practice of trans-cranial Doppler and pneumococcal conjugate vaccine) and their link with the residual risks of death, stroke and invasive pneumococcal infections. The study includes all patients born in France between 01/01/2006 and 31/12/2010. Events are recorded and analysed only during the first 5 years of life.