The Peer Support Study

Status Active, not recruiting

Clinical Trial Summary

Competent family caregivers (FC) are essential for successful caring for individuals with NMD. However, family caregiving is known to contribute to significant FC burden and social isolation, and negatively affects FC health. Infrastructure to support FCs is paramount to ensure that individuals with NMD can safely remain at home. Individuals with NMD have complex health problems, require a lot of care and they use the healthcare system often. COVID-19 physical distancing has increased the care burden and social isolation for many FCs. Infrastructure to support FCs is paramount to ensure that individuals with NMD can safely remain at home. Peer support includes emotional and informational support by an individual that has experienced a similar health problem. It improves health-related quality of life, increases self-efficacy and empowerment, and decreases stress in various patient and caregiver populations. With our study we plan to educate and empower individuals with NMD and their caregivers and develop a comprehensive peer support program.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Neuromuscular Diseases

Clinical Trial Details

NCT number	NCT05070624
Study type	Interventional
Source	The Hospital for Sick Children
Contact
Status	Active, not recruiting
Phase	N/A
Start date	September 15, 2022
Completion date	December 30, 2024

View Details

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