Neurofibromatoses Clinical Trial
Official title:
Establishment of Neurofibromatosis-associated Tumours Biobank for Future Genomic-based Research Aiming at Improved Outcome Prediction
Neurofibromatosis-associated Tumor is very rare bone tumor. The investigator set up the biobank to ensure every patient has the chance to participate in future research
Samples of blood and other stored material such as slides,frozen tissues or leftover
diagnostic material.
Questionnaire information, including health history, growth and development, physical
activity and family medical history information.
If patients have been diagnosed with a neurofibromatosis-associated tumor or another
condition the investigator is interested in， the investigator will ask the patient to release
medical record information relating to diagnosis and treatment of
neurofibromatosis-associated tumor, other cancers, blood disorders, and similar conditions.
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