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Muscle Diseases clinical trials

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NCT ID: NCT02810028 Completed - Muscle Diseases Clinical Trials

Acceptance and Commitment Therapy for Muscle Disease

ACTMuS
Start date: July 2016
Phase: N/A
Study type: Interventional

In adults, muscle diseases are usually chronic long-term conditions that do not have a definitive cure. Supportive care has been shown to reduce complications from muscle disease and improved survival in some cases. However, there has been limited research to evaluate interventions that may improve quality of life (QoL) with this patient group. The QoL of those with MD is not just affected by the severity of their MD but also a variety of psychological variables. Based upon the knowledge of these psychological variables the investigators feel that a particular type of psychological intervention known as "acceptance and commitment therapy" (ACT) could potentially improve QoL in those with MD. The investigators therefore propose to test whether ACT does in fact improve QoL in those with MD by randomising 154 patients to receive either standard medical care plus a guided self-help ACT programme, or standard medical care only.

NCT ID: NCT02124616 Recruiting - Clinical trials for Spinal Muscular Atrophy

National Registry for Egyptian Pediatric Neuromuscular Diseases

Start date: April 2014
Phase: N/A
Study type: Observational [Patient Registry]

Our aim is to establish multi-center national Egyptian database of information for inherited and acquired neuromuscular diseases in infants and children from 0 to 18 years of age.