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Parental Coping With Challenging Behavior in Mucopolysaccharidosis Type I-III

Coping Behavior Clinical Trial

Official title:
Behavioral Challenges in Children With Mucopolysaccharidosis Type I-III and Parental Coping Strategies

Clinical Trial Summary

The study quantitates behavioral challenges in mucopolysaccharidosis type I-III and parental coping strategies

Clinical Trial Description

This is a prospective, cross-sectional, observational study quantitatively assessing

1. challenging behavior in children with MPS, an orphan, progressive, neurodegenerative metabolic disorder, and

2. parental coping strategies for this challenging behavior.

Patients registered at the German Society for Mucopolysacchardoses giving written informed consent are eligible. The study is based on questionnaires. IRB approval was obtained. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03161171
Study type Observational
Source University Hospital Heidelberg
Contact
Status Completed
Phase N/A
Start date July 6, 2017
Completion date November 13, 2017
View Details
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