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MPS - Mucopolysaccharidosis clinical trials

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NCT ID: NCT03150069 Completed - Morquio Disease Clinical Trials

Pregnancy With Morquio Syndrome - What Are Patients' Perspectives and Has ERT Changed Them?

MorqPreg
Start date: May 10, 2017
Phase:
Study type: Observational

The present study seeks to interview women with Morquio A and Morquio B syndrome, to explore their concerns surrounding pregnancy and the impact of ERT on their perspectives, in comparison with the control group of Morquio B subjects for whom no ERT treatment exists. Interviews will be conducted by a health psychologist, in-person or over the telephone. Data will be analyzed using MAXQDA 12.0 software and Grounded Theory. Differences in thematic trends between Morquio A subjects, for whom treatment exists, and a control group of Morquio B subjects, for whom there is no treatment, will be compared.