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Motor Neuron Disease clinical trials

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NCT ID: NCT06429059 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis ALS

ROAR-DIGAP: A Widely Inclusive, Largely Virtual Pilot Trial Utilizing DIGAP (Deep Integrated Genomics Analysis Platform) To Personalize Treatments

Start date: June 12, 2024
Phase: Phase 2
Study type: Interventional

GenieUs developed an analysis platform that will be tested to separate study participants with ALS into four categories based on blood work. These general categories are neuroinflammation, oxidative stress, impaired autophagy & axonal transport, and mitochondrial dysfunction. Once a disease category is established, participants in this study will receive one of four individualized supplements for 6 months and we will determine whether these are slowing ALS progression: Astaxanthin will be given for the category of neuroinflammation, Protandim for oxidative stress, Melatonin for impaired autophagy and MitoQ for mitochondrial dysfunction. During the first 3 months, participants will have routine monitoring and in months 3 through 9 they will receive the assigned supplement.

NCT ID: NCT06376279 Enrolling by invitation - Epilepsy Clinical Trials

Genetic Diagnosis in Inborn Errors of Metabolism

Start date: April 29, 2008
Phase:
Study type: Observational

Inborn Errors of metabolism comprise a large number of rare conditions with a collective incidence of around 1/2000 newborns. Many disorders are treatable provided that a correct diagnosis can be established in time, and for many diseases novel therapies are being developed. Without treatment, many of the conditions result in early death or severe irreversible handicaps. The Centre for Inherited Metabolic Diseases, CMMS at Karolinska university hospital, is an integrated expert center where clinical specialists work closely together with experts in laboratory medicine, combining clinical genetics, clinical chemistry, pediatrics, neurology, and endocrinology. The center serves the whole Swedish population with diagnostics and expert advice on IEM and has a broad arsenal of biochemical investigations designed to detect defects in intermediary metabolism.

NCT ID: NCT05903690 Enrolling by invitation - Gene Mutation Clinical Trials

Safety and Tolerability of RAG-17 in the Treatment of Amyotrophic Lateral Sclerosis Patients With SOD1 Gene Mutation

Start date: May 22, 2023
Phase: Early Phase 1
Study type: Interventional

The goal of this clinical trial is to evaluate the safety, tolerability and pharmacokinetics of RAG-17 in adult amyotrophic lateral sclerosis (ALS) patients with SOD1 mutation. Patients will receive drug treamtent via dose escalation which ranging from minimum of 60 mg to the maximum tolerated dose (MTD), after reaching the tolerated dose, a fixed dose of the drug is given once every two months for continuous treatment, and the total treatment cycle is 8 months. The duration of this study is two years.

NCT ID: NCT05842941 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

HEALEY ALS Platform Trial - Regimen G DNL343

Start date: May 24, 2023
Phase: Phase 2/Phase 3
Study type: Interventional

The HEALEY ALS Platform Trial is a perpetual multi-center, multi-regimen clinical trial evaluating the safety and efficacy of investigational products for the treatment of ALS. Regimen G will evaluate the safety and efficacy of a single study drug, DNL343, in participants with ALS.

NCT ID: NCT05740813 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

HEALEY ALS Platform Trial - Regimen F ABBV-CLS-7262

Start date: March 23, 2023
Phase: Phase 2/Phase 3
Study type: Interventional

The HEALEY ALS Platform Trial is a perpetual multi-center, multi-regimen clinical trial evaluating the safety and efficacy of investigational products for the treatment of ALS. Regimen F will evaluate the safety and efficacy of a single study drug, ABBV-CLS-7262, in participants with ALS.

NCT ID: NCT05725759 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

Rehabilitation in SOD1 ALS Treated With Tofersen

Start date: November 8, 2022
Phase:
Study type: Observational

The primary objective of this study is to document and describe the effects of a personalized rehabilitation program for patients with SOD1 ALS participating in the tofersen expanded access program. Participants currently receiving tofersen treatment will be referred to outpatient physical and/or occupational therapy. Participants will have an initial assessment performed and an individualized rehabilitation program will be prescribed. Each participant is encouraged to follow the prescribed recommendations that will include scheduled outpatient therapy sessions, functional assessments, and/or a home-based rehabilitation program. Functional assessments will be done at a minimum of every three months.

NCT ID: NCT05619783 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

Extension Study Evaluating The Safety And Tolerability of AMX0035

Start date: December 29, 2022
Phase: Phase 3
Study type: Interventional

The primary objective is to evaluate the safety and tolerability of AMX0035 over 108 weeks of open label treatment for participants previously enrolled in Study A35-004 (PHOENIX).

NCT ID: NCT05119387 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

Genetic Study of Amyotrophic Lateral Sclerosis in Norway

GAIN
Start date: August 1, 2019
Phase:
Study type: Observational [Patient Registry]

The purpose of this study is to explore the genetic causes relevant for ALS development in Norway.

NCT ID: NCT05106569 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

Telespirometry in Amyotrophic Lateral Sclerosis (ALS)

Start date: April 28, 2021
Phase:
Study type: Observational

The investigators seek to validate Slow Vital Capacity (SVC) measurement in seated and supine positions using conventional and portable spirometry.

NCT ID: NCT04961450 Enrolling by invitation - Clinical trials for Amyotrophic Lateral Sclerosis

Explore Biomarkers of Motor Neuron Disease/Frontal Dementia Spectrum Disease in China

Start date: June 24, 2021
Phase:
Study type: Observational

1. To investigate the biomarkers of MND/FTD spectrum disease 2. To explore the possible pathogenesis of MND/FTD