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Mazabraud Syndrome clinical trials

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NCT ID: NCT03231644 Recruiting - Fibrous Dysplasia Clinical Trials

Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry

Start date: October 31, 2016
Phase:
Study type: Observational [Patient Registry]

The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.