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NCT06287359 Clinical Trial

Experience of Parents/Carers of Children With Severe Motor Disabilities Suffering From Spinal Pain?

Low Back Pain Clinical Trial

— Vé-Quo-Pa-H-R  

Official title:
What is the Day-to-day Experience of Parents/Carers of Children or Adolescents With Severe Motor Disabilities Suffering From Spinal Pain?

Clinical Trial Details — Status: Not yet recruiting

Administrative data
NCT number NCT06287359
Other study ID # Local/2024/MP-01
Secondary ID
Status Not yet recruiting
Phase
First received
Last updated
Start date May 2024
Est. completion date December 2024

Study information
Verified date April 2024
Source Centre Hospitalier Universitaire de Nimes
Contact Mélanie PORTE
Phone +33 4 66 68 34 59
Email melanie.porte@chu-nimes.fr
Is FDA regulated No
Health authority
Study type Observational

Clinical Trial Summary

Parents of disabled children suffer from back pain more frequently than the general population. At present, the literature does not identify any specific factors responsible for this suffering. For patients suffering from chronic back pain, there are specific treatment programmes in the Physical Medicine and Rehabilitation Department, with a focus on pain management. The investigators would like to develop specific programmes for parents/carers of children/adolescents with severe motor disabilities. To achieve this, it is important to gain a better understanding of the factors that contribute to the onset of pain. With this in mind, the investigators are conducting a qualitative study to gain a better understanding of the day-to-day lives of these parents.

Recruitment information / eligibility
Status Not yet recruiting
Enrollment 15
Est. completion date December 2024
Est. primary completion date December 2024
Accepts healthy volunteers No
Gender All
Age group 18 Years and older
Eligibility Inclusion Criteria: - Parents or carers of children with severe motor disabilities complaining of spinal pain Exclusion Criteria: - Parent/carer refusing to participate

Study Design

Related Conditions & MeSH terms

Intervention

Other:
• individual interviews
Qualitative research with individual interviews

Locations
Country Name City State
n/a

Sponsors (1)
Lead Sponsor Collaborator
Centre Hospitalier Universitaire de Nimes

Outcome
Type Measure Description Time frame Safety issue
Primary Individual interviews To understand the lived experience of parents/carers during the daily care of their child by means of a phenomenological analysis of the interviews baseline
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