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Clinical Trial Summary

Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.


Clinical Trial Description

Detailed data on childhood cancer treatments were used during a study of feasibility in spring 2020 to allocate specific modules to each participant. The aim of the present study is to quantify the impact of this MOOC on the CCS knowledge about LTFU adapted to their own medical history, but also to measure how this MOOC can improve the LTFU care of each CCS. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT05233189
Study type Interventional
Source Centre Hospitalier Universitaire de Saint Etienne
Contact Claire BERGER, MD-PHD
Phone (0)4 77 82 86 55
Email claire.berger@chu-st-etienne.fr
Status Not yet recruiting
Phase N/A
Start date June 2024
Completion date November 2025

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