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Kaposiform Lymphangiomatosis clinical trials

View clinical trials related to Kaposiform Lymphangiomatosis.

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NCT ID: NCT03001180 Recruiting - Vascular Anomaly Clinical Trials

Identification of Biomarkers for Patients With Vascular Anomalies

Start date: April 2015
Phase:
Study type: Observational

The study will use blood (serum and plasma) and tissue obtained from participants undergoing prescribed surgical resection of vascular anomalies of interest proposed in this study. The study will also use blood (serum and plasma) and tissue collected and stored in a tissue bank maintained by the Department of Hematology/Oncology.

NCT ID: NCT02399527 Recruiting - Clinical trials for Lymphatic Malformation

Lymphatic Anomalies Registry for the Assessment of Outcome Data

Start date: June 2013
Phase:
Study type: Observational [Patient Registry]

Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.