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Representation and Medication Use in Juvenile Idiopathic Arthritis — RUMAJI  

Juvenile Idiopathic Arthritis Clinical Trial

Official title:
Representation and Medication Use in Juvenile Idiopathic Arthritis - RUMAJI

Clinical Trial Summary

According to the International League of Associations for Rheumatology classification, Juvenile Idiopathic Arthritis (JIA) comprises a heterogeneous group of arthritis of unknown cause and with onset before 16 years of age, characterized by joint inflammation lasting for 6 or more weeks. Few studies exist regarding the care experience of children affected by this rheumatic condition. On the other hand, methotrexate and biologics constitute the primary treatment for children with JIA. As with adults undergoing the same treatment, adherence is critical. Difficulties for children to take the drugs have been reported. Notwithstanding, if adherence promotion in pediatric chronic conditions has been the subject of recommendations with regard to care management, the investigators lack information to understand the grounds for adherence specifically in JIA. In order to understand and decipher the parent-child adherence mechanisms and practices, the RUMAJI study will be conducted. Indeed, improving the relational approach between children and their caregivers as well as unrestricted drug adherence involves researching and understanding how appropriation of the disease and treatment could be achieved.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03892135
Study type Observational
Source University Hospital, Montpellier
Contact
Status Completed
Phase
Start date April 1, 2017
Completion date December 1, 2017
View Details
See also
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