Clinical Trials Logo

Clinical Trial Summary

The KAPPa project has the aim to create an international database in which information about clinical features, therapeutic management, burden of illness and costs of severe and moderate haemophilia A patients from different countries and sites is collected. The aim of this project is to analyse the influence of such different characteristics on medical, psychosocial and economic outcomes in patients over the long-term.

Clinical Trial Description

1000 patients with hemophilia A will be enrolled using a webbased registry. Key quality factors that will be registered are : hemophilia joint Health score (HJHS), annual bleed rate, quality of Life (EQ5D), as well as dosing of replacement therapy. ;

Study Design

Related Conditions & MeSH terms

NCT number NCT02996942
Study type Observational [Patient Registry]
Source Lund University
Status Withdrawn
Start date July 2012
Completion date December 2017

See also
  Status Clinical Trial Phase
Active, not recruiting NCT02314702 - Post Market Clinical Follow-Up Study Protocol for PROFEMUR® L Revision Femoral Stems
Completed NCT03272139 - Interscalene Block Versus Superior Trunk Block Phase 4
Completed NCT03271151 - Effect of Duloxetine on Opioid Use After Total Knee Arthroplasty Phase 4
Completed NCT01407874 - A Randomized, Double-Blind, Dose-Response Study of the Safety and Uric Acid Effects of Oral Ulodesine Added to Allopurinol in Subjects With Gout and Concomitant Moderate Renal Insufficiency Phase 2
Completed NCT01256216 - Signature Versus Computer Assisted Surgery Study N/A
Recruiting NCT04037735 - RSA-RCT: Attune S+ TKA Versus Sigma TKA N/A
Completed NCT03337243 - Effect of Implanting Allogenic Cytokines Derived From Human Amniotic Membrane (HAM) and Mesenchymal Stem Cells Derived From Human Umbilical Cord Wharton's Jelly (HUMCWJ) on Pain and Functioning of Knee Osteoarthritis N/A
Recruiting NCT03294408 - Multimodal Imaging of Subchondral Bone in Knee Osteoarthritis : Predictive Model N/A
Withdrawn NCT02668211 - Radiostereometric Analysis (RSA) of the PROFEMUR® Preserve Classic Femoral Components N/A
Enrolling by invitation NCT02239783 - Post Market Clinical Follow-Up Study Protocol for PROFEMUR® TL Modular Femoral Stems
Terminated NCT00698347 - A Clinical Investigation of the M2a-Magnumâ„¢ Hip System N/A
Completed NCT00223353 - Quantitative Gait Analysis for Clinical Decision Making N/A
Terminated NCT03575975 - 3D X-ray Motion Analysis of Ankle-foot Motion After Total Ankle Arthroplasty
Not yet recruiting NCT03894514 - Multi-variable Prediction Model of Total Knee Replacement Outcome
Completed NCT02865447 - Evaluation of Bone Mineral Density Changes After Total Hip Replacement: A Two-Year Clinical and DXA Analysis
Recruiting NCT03576573 - Post Market Clinical Follow-Up Study Protocol for PROCOTYL® C Acetabular Components
Completed NCT02967874 - Autologous Adipose-Derived Stromal Vascular Fraction Cells for Osteoarthritis Treatment Phase 1/Phase 2
Completed NCT02390336 - Mobilization With Movement in Patients With Osteoarthritis of the Hip N/A
Terminated NCT03293719 - Post-market Follow up Study of the 'BPK-S Integration' UC as Primary Implant in the Variants CoCr or Ceramic
Enrolling by invitation NCT02823834 - PMCF Study Protocol for PROFEMUR® Gladiator Plasma Femoral Stems and PROCOTYL® L Beaded Acetabular Components