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Clinical Trial Summary

The KAPPa project has the aim to create an international database in which information about clinical features, therapeutic management, burden of illness and costs of severe and moderate haemophilia A patients from different countries and sites is collected. The aim of this project is to analyse the influence of such different characteristics on medical, psychosocial and economic outcomes in patients over the long-term.


Clinical Trial Description

1000 patients with hemophilia A will be enrolled using a webbased registry. Key quality factors that will be registered are : hemophilia joint Health score (HJHS), annual bleed rate, quality of Life (EQ5D), as well as dosing of replacement therapy. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT02996942
Study type Observational [Patient Registry]
Source Lund University
Contact
Status Withdrawn
Phase
Start date July 2012
Completion date December 2017

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