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Research Engagement With People With Intellectual and Developmental Disabilities — PCORI  

Intellectual Disability Clinical Trial

Official title:
Engagement in Healthy Communities for People With Intellectual and Developmental Disabilities

Clinical Trial Summary

The objectives of this project are to to build sustainable regional communities of Intellectual or Developmental Disabilities (IDD) stakeholders to provide ongoing input to research priorities, methodological processes, and relevant person-centered health outcomes; leverage existing Special Olympic infrastructure to nationally disseminate the toolkit in order to increase participation and engagement in research and improve health outcomes; conduct comparative effectiveness trials that incorporate people with IDD focusing on their research priorities.

Clinical Trial Description

This project will develop a skilled community of stakeholders through collaboration with Special Olympics to create capacity building working groups. Groups will collaborate to develop stakeholder training modules focused on leadership, research fundamentals, and health. Collaboratively developed trainings will be piloted to support revising of the Toolkit for the engagement of people with IDD in research. A range of stakeholders will be essential members of the team to design and provide critical feedback on the effectiveness of the Toolkit, research priorities, and ecologically valid methodologies. Finally, research priorities will be refined, and the research engagement Toolkit will be nationally disseminated to Special Olympics and relevant community organizations. The toolkit will include necessary training for people with IDD, as well as paid and unpaid caregivers to be engaged partners in research. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT04182347
Study type Interventional
Source University of Wisconsin, Madison
Contact
Status Completed
Phase N/A
Start date January 1, 2020
Completion date October 31, 2020
View Details
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