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Clinical Trial Summary

This is a retrospective and cross-sectional review of the natural history of INAD.


Clinical Trial Description

After obtaining informed consent, the study participants' relevant medical records will be collected and reviewed. If needed, a telephone or video conference will be scheduled with the patient's family to confirm and clarify information in the medical record. Deceased patients may be eligible for inclusion the retrospective registry if medical records are sufficient and indicate eligibility. Data will be pooled and presented in aggregate, without identification of individual subjects. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT03999814
Study type Observational
Source Retrotope, Inc.
Contact
Status Completed
Phase
Start date July 30, 2018
Completion date February 27, 2020

See also
  Status Clinical Trial Phase
Active, not recruiting NCT03570931 - A Study to Assess Efficacy and Safety of RT001 in Subjects With Infantile Neuroaxonal Dystrophy Phase 2/Phase 3
Terminated NCT03726996 - Desipramine in Infantile Neuroaxonal Dystrophy (INAD). Phase 4