Making HD Voices Heard

Status Completed

Clinical Trial Summary

The Pilot Study, Making HD Voices Heard, will ask people living with HD to report what they experience and how they function.

Clinical Trial Description

The Huntington Study Group (HSG) myHDstory™ Platform is an online, observational research platform that will host the Pilot Study, Making HD Voices Heard. The Pilot Study will ask people living with HD to report what they experience and how they function. Participants will provide self-reported information using their own compatible smartphones, laptops, desktops, or tablets. Participants will be asked to reply to a series of questions, including open-ended questions that will be transcribed by voice (microphone voice-to-text transcription) or keyboard-entered text to record what they experience in their own words. ;

Study Design

Related Conditions & MeSH terms

Huntington Disease

Clinical Trial Details

NCT number	NCT05268029
Study type	Observational
Source	Huntington Study Group
Contact
Status	Completed
Phase
Start date	March 23, 2022
Completion date	October 11, 2023

View Details

See also
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