Clinical Trials Logo

Clinical Trial Summary

Spanish Validation of HAL and HEP questionnaire by double translation (English-Spanish-English), with a pilotage pediatric patients with hemophilia and adults and parents of children with hemophilia. The final validity will be obtained with a sample of 60-100 patients with hemophilia


Clinical Trial Description

Validation of the Spanish hemophilia specific questionnaires: HAL and HEP (adult version version version children and parents). To do this, there will be a double inverse translation, a pilotage of validity and clarity with a small sample of subjects and analysis of reliability and validity with more than 100 patients and parents of children with hemophilia to complete the validation. ;


Study Design

Observational Model: Cohort, Time Perspective: Prospective


Related Conditions & MeSH terms


NCT number NCT02512211
Study type Observational
Source Universidad Católica San Antonio de Murcia
Contact
Status Active, not recruiting
Phase N/A
Start date October 2015
Completion date October 2016

See also
  Status Clinical Trial Phase
Completed NCT02229331 - Biomechanical Determinants and Patterns Associated to the Pathophysiological Cascade of Ankle Arthropathy in Children With Haemophilia: Non-invasive In-vivo Measurement of Foot Joints in Children With Haemophilia During Gait.
Completed NCT02870114 - National Survey of People With Haemophilia in Portugal N/A
Recruiting NCT02197611 - Development of a Specific Measure for Assessing Adherence in Adult Patients With Hemophilia. N/A
Unknown status NCT02582450 - Validation of a Specific Measure for Assessment of Compliance With Treatment in Patients With Hemophilia N/A
Completed NCT05138224 - Prevalence of Autistic Spectrum Disorder (ASD) in Children With Haemophilia
Recruiting NCT03287999 - Inter Individual Variability in Initiation Pathway Activation and Regulation and Phenotypic Heterogeneity in Patients With Haemophilia A and B
Completed NCT02825667 - Effectiveness of the Myofascial Therapy in the Hemophilic Arthropathy of Ankle N/A
Completed NCT03818529 - ATHN 8: Previously Untreated Patients (PUPs) Matter Study
Completed NCT05108480 - Self-myofascial Release With Foam Roller in Patients With Hemophilic Knee Arthropathy N/A
Completed NCT02781233 - A Progressive Resistance Training Program in Patients With Haemophilia N/A
Active, not recruiting NCT02581735 - Effectiveness of the uPatient Platform in Prophylactic Treatment in Hemophilia N/A
Not yet recruiting NCT01623960 - Quality of Life in Adult Patients With Severe Haemophilia in Turkey N/A
Recruiting NCT02191436 - Adherence to Treatment in Hemophilia N/A
Completed NCT03264014 - Combining Registry Data in Haemophilia: TARGET H N/A
Recruiting NCT02198430 - Multidisciplinary Evaluation of Patients With Hemophilia N/A
Not yet recruiting NCT06046235 - Virtual Evaluations of Joint Health Using Wearable Sensors in Persons With Haemophilia (VESPA)
Completed NCT03529474 - Psychology and Physiotherapy Approach of Chronic Pain in Patients With Hemophilia N/A
Completed NCT05425888 - Functional and Proprioceptive Status in Patients With Hemophilic Ankle Arthropathy
Recruiting NCT03914209 - Extended Half-Life (EHL) Clotting Factor for Improving the Musculoskeletal Health of Patients With Hemophilia
Completed NCT04205188 - The Effects of Therapeutic Exercises on Kinesiophobia in Haemophilic Patients. N/A