Haemophilia Clinical Trial
Official title:
Development of a Specific Measure for Assessing Adherence in Adult Patients With Hemophilia. The Haemo-Adhaesione Questionnaire
Research project for the development, construction and validation of a questionnaire of adherence to treatment in adult patients with hemophilia. It aims to build a scale according to five relevant dimensions of adherence to treatment: 1) physician-patient relationship, 2) knowledge of the disease, 3) previous bleeding problems, 4) knowledge of future consequences and difficulties, and 5) benefits of treatment.
- Descriptive study for the construction of a multidimensional scale of adherence to
treatment in adult patients with hemophilia.
- Validation of a scale specific measure for patients with hemophilia that includes 5
dimensions that may affect adherence to treatment: a) the doctor-patient, b) regarding
knowledge of the disease, c) the previous hemorrhages, d) knowledge future sequels, e)
difficulties with treatment.
- Statistical and psychometric analysis of the adherence questionnaire for adult patients
with hemophilia.
- Description of the theoretical framework that justifies the completion of the
questionnaire, and the choice of the dimensions and items that make up the measurement
scale.
- The questionnaire obtained in this project will identify the actual degree of patient
adherence to multidisciplinary treatment, taking as gold standard, compliance with
pharmacological treatment (the difference between the treatment prescribed and
consumed).
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Observational Model: Cohort, Time Perspective: Cross-Sectional
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Completed |
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||
| Completed |
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National Survey of People With Haemophilia in Portugal
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| Unknown status |
NCT02582450 -
Validation of a Specific Measure for Assessment of Compliance With Treatment in Patients With Hemophilia
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| Completed |
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Inter Individual Variability in Initiation Pathway Activation and Regulation and Phenotypic Heterogeneity in Patients With Haemophilia A and B
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| Completed |
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| Completed |
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ATHN 8: Previously Untreated Patients (PUPs) Matter Study
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Self-myofascial Release With Foam Roller in Patients With Hemophilic Knee Arthropathy
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| Completed |
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Virtual Evaluations of Joint Health Using Wearable Sensors in Persons With Haemophilia (VESPA)
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| Completed |
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Psychology and Physiotherapy Approach of Chronic Pain in Patients With Hemophilia
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| Completed |
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Functional and Proprioceptive Status in Patients With Hemophilic Ankle Arthropathy
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