Haemophilia Clinical Trial
— TurkHaemQoLOfficial title:
A Nationwide Multicenter Study on the Quality of Life in Adult Patients With Severe Haemophilia in Turkey
The primary aim of this study is to evaluate the overall quality of life in adult patients with severe haemophilia (an inherited bleeding disorder affecting mainly men) in Turkey and to assess the impact of certain disease and drug related factors (treatment modality, presence of viral disease, inhibitor, etc.) on the quality of life.
Status | Not yet recruiting |
Enrollment | 500 |
Est. completion date | February 2014 |
Est. primary completion date | October 2013 |
Accepts healthy volunteers | No |
Gender | Male |
Age group | 18 Years and older |
Eligibility |
Inclusion Criteria: - age equal or greater than 18 years - male gender - factor VIII or IX level equal or below 1% - patients that are willing to participate and have given a written consent Exclusion Criteria: - age less than 18 years - females - factor levels above 1% |
Observational Model: Cohort, Time Perspective: Cross-Sectional
Country | Name | City | State |
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n/a |
Lead Sponsor | Collaborator |
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Turkish Society of Hematology |
Status | Clinical Trial | Phase | |
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Completed |
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