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Friedreich Ataxia clinical trials

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NCT ID: NCT02415127 Completed - Friedreich's Ataxia Clinical Trials

Safety, Tolerability and Efficacy of ACTIMMUNE® Dose Escalation in Friedreich's Ataxia

STEADFAST
Start date: June 2015
Phase: Phase 3
Study type: Interventional

The purpose of this phase 3 randomized, multi-center, double-blind, placebo-controlled study is to evaluate the efficacy and safety of ACTIMMUNE® (interferon-γ 1b) in the treatment of Friedreich's Ataxia (FA) and to evaluate the pharmacokinetic (PK) characteristics of ACTIMMUNE® in FA patients.

NCT ID: NCT02316314 Recruiting - Friedreich's Ataxia Clinical Trials

Characterization of the Cardiac Phenotype of Friedreich's Ataxia (FRDA)

Start date: January 15, 2015
Phase:
Study type: Observational

Friedreich's ataxia (FRDA) is an autosomal recessive disease characterized by loss of coordination and cardiomyopathy. It is the most common form of inherited ataxia with an incidence in 1/50,000 in the Caucasian population. FRDA is associated with progressive damage to the nervous system, resulting in symptoms ranging from gait disturbance to speech problems, as well as diabetes and heart disease. The heart disease manifests as cardiomyopathy, and is responsible for approximately 60% of deaths from FRDA. This study is designed to characterize the cardiac manifestations of the disease using exercise, MRI, ECHO and serum parameters, in the context of the neurological disease. In addition, this study will demonstrate that corneal confocal microscopy (CCM) may also provide a biomarker for FRDA.

NCT ID: NCT02255435 Active, not recruiting - Friedreich Ataxia Clinical Trials

RTA 408 Capsules in Patients With Friedreich's Ataxia - MOXIe

Start date: January 31, 2015
Phase: Phase 2
Study type: Interventional

Friedreich's ataxia is an autosomal recessive cerebellar ataxia caused by triplet-repeat expansions. The causative mutation is a trinucleotide (GAA) repeat expansion in the first intron of the frataxin gene, leading to impaired transcription of frataxin. The pathological consequences of frataxin deficiency include a severe disruption of iron-sulfur cluster biosynthesis, mitochondrial iron overload coupled to cellular iron dysregulation, and an increased sensitivity to oxidative stress. A hallmark of Friedreich's ataxia is impairment of antioxidative defense mechanisms, which play a major role in disease progression. Studies have demonstrated that nuclear factor erythroid-derived 2-related factor 2 (Nrf2) signaling is grossly impaired in participants with Friedreich's ataxia. Therefore, the ability of omaveloxolone (RTA 408) to activate Nrf2 and induce antioxidant target genes is hypothesized to be therapeutic in participants with Friedreich's ataxia. This 2-part study will evaluate the efficacy, safety, and pharmacodynamics of omaveloxolone (RTA 408) in the treatment of participants with Friedreich's ataxia. Part 1: The first part of this study will be a randomized, placebo-controlled, double-blind, dose-escalation study to evaluate the safety of omaveloxolone (RTA 408) at various doses in participants with Friedreich's ataxia. Part 2: The second part of this study is a randomized, placebo-controlled, double-blind, parallel-group study to evaluate the safety and efficacy of omaveloxolone (RTA 408) 150 mg in participants with Friedreich's ataxia. Participants enrolled in Part 2 will be randomized 1:1 to receive omaveloxolone (RTA 408) 150 mg or placebo. Extension: The extension will assess long-term safety and tolerability of omaveloxolone (RTA 408) in qualified participants with Friedreich's ataxia following completion of Part 1 or Part 2. Participants will not be unblinded to study treatment in Part 1 or Part 2 upon entering the extension study. Participants will receive open-label omaveloxolone (RTA 408) at 150 mg once daily.

NCT ID: NCT02179333 Completed - Friedreich's Ataxia Clinical Trials

Preliminary Study of the Scale To Assess Ataxia and Neurologic Dysfunction (STAND)

STAND
Start date: October 2012
Phase:
Study type: Observational

The objectives of this study are: - To validate the inter-rater and intra-rater reliability of a new scale for the assessment of ataxia and neurologic dysfunction (STAND) - To assess common constructs and correlation between STAND subscale items.

NCT ID: NCT02069509 Recruiting - Friedreich's Ataxia Clinical Trials

Patient Registry of the European Friedreich's Ataxia Consortium for Translational Studies (EFACTS)

EFACTS
Start date: May 2010
Phase:
Study type: Observational [Patient Registry]

This is a multi-centre, multi-national, prospective, observational study of Friedreich's Ataxia (FRDA) with a control group to: - obtain natural history data on individuals affected by FRDA - relate clinical assessments and results from proteomic analyses - expedite identification and recruitment of participants for clinical trials - develop and validate sensitive and reliable outcome measures for detecting onset and change over the natural course of FRDA which may also be potential outcome measures for use in future clinical trials and clinical care - plan for future research studies

NCT ID: NCT02035020 Completed - Friedreich Ataxia Clinical Trials

A Phase IIa Trial to Test Safety and Efficacy Interferon Gamma Treatment in Elevating Frataxin Levels in FRDA Patients

Start date: May 2013
Phase: Phase 2
Study type: Interventional

The primary objective of this study is to investigate whether the treatment with IFN gamma can induce significant accumulation of frataxin in FRDA patients, a possibility suggested by pre-clinical evidence in an animal model of the disease.

NCT ID: NCT01965327 Completed - Friedreich Ataxia Clinical Trials

Interferon Gamma-1b in Friedreich Ataxia (FRDA)

Start date: August 2013
Phase: Phase 2
Study type: Interventional

Friedreich ataxia (FRDA) is a progressive neurodegenerative disease of children and adults for which there is presently no therapy. Recently, a study reported that interferon gamma (IFN-g) could raise frataxin protein levels in both cell lines derived from patients with Friedreich ataxia and in a mouse model with Friedreich ataxia. The present study will test whether IFN-g is safe, tolerated and potentially efficacious in a heterogeneous cohort of children with FRDA.

NCT ID: NCT01962363 Completed - Friedreich's Ataxia Clinical Trials

EPI-743 in Friedreich's Ataxia Point Mutations

Start date: October 2013
Phase: Phase 2
Study type: Interventional

The purpose of this study is to evaluate the effects of EPI-743 in patients with Friedreich's Ataxia point mutations

NCT ID: NCT01921868 Recruiting - Friedreich's Ataxia Clinical Trials

An Open-label Study of the Effects of Acetyl-L-Carnitine on Cardiovascular Outcomes in Friedreich's Ataxia

Start date: August 2013
Phase: N/A
Study type: Interventional

The purpose of this study is to learn how treatment with acetyl-L-carnitine (ALCAR) will affect the hearts of patients with Friedreich's Ataxia as well as how it may affect other symptoms of Friedreich's Ataxia such as difficulties with balance, walking, or upper arm function.

NCT ID: NCT01898884 Completed - Friedreich's Ataxia Clinical Trials

Safety and Pharmacology Study of VP 20629 in Adults With Friedreich's Ataxia

Start date: August 13, 2013
Phase: Phase 1
Study type: Interventional

The objectives of the study are: - To evaluate the safety and tolerability of single and multiple oral doses of VP 20629 in subjects with Friedreich's ataxia (FA). [Primary] - To characterize the pharmacokinetics of VP 20629 by investigation of the plasma concentration-time profile following single and multiple oral doses in subjects with FA. [Secondary] - To investigate the pharmacodynamic effects of VP 20629 on plasma 8-isoprostane and malondialdehyde and urinary 8-hydroxydeoxyguanosine concentrations following multiple oral doses in subjects with FA. [Exploratory]