Clinical Trials Logo
  1. Home
  2. Communication
  3. NCT03720028
  4. Details
NCT03720028 Clinical Trial

Angelman & Rett Syndrome: Interaction and Communication

Communication Clinical Trial

Official title:
Parent-child Interaction and Communication in Families Who Have a Child With Rett Syndrome or Angelman Syndrome

Clinical Trial Details — Status: Completed

Administrative data
NCT number NCT03720028
Other study ID # Snummer
Secondary ID
Status Completed
Phase
First received
Last updated
Start date December 1, 2018
Est. completion date July 1, 2020

Study information
Verified date October 2018
Source Universitaire Ziekenhuizen Leuven
Contact n/a
Is FDA regulated No
Health authority
Study type Observational

Clinical Trial Summary

We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.

Recruitment information / eligibility
Status Completed
Enrollment 20
Est. completion date July 1, 2020
Est. primary completion date October 1, 2019
Accepts healthy volunteers No
Gender All
Age group 1 Year to 14 Years
Eligibility Inclusion Criteria: - Angelman or Rett syndrome Exclusion Criteria: - none

Study Design

Related Conditions & MeSH terms

Intervention

Behavioral:
• Observation
Describe communication and sensory profile using standardized tests and observations.
• Parental experiences
Survey parents' experiences with parent-child interaction and augmentative and alternative communication.

Locations
Country Name City State
Belgium Katholieke Universiteit Leuven Leuven Vlaams-Brabant

Sponsors (2)
Lead Sponsor Collaborator
Universitaire Ziekenhuizen Leuven KU Leuven

Country where clinical trial is conducted

Belgium, 

Outcome
Type Measure Description Time frame Safety issue
Primary Communication profile Scores on language tests 1 day One-time measurement
Primary Parent interaction Scores on social tests 1 day One-time measurement
See also
  Status Clinical Trial Phase
Completed NCT05203146 - PIMPmyHospital: a Mobile App to Improve Emergency Care Efficiency and Communication N/A
Completed NCT04105751 - Testing a Novel Manual Communication System for Mechanically Ventilated ICU Patients N/A
Completed NCT04595695 - The Effect of Clear Masks in Improving Patient Relationships N/A
Completed NCT05540444 - RadConnect Communication Application
Recruiting NCT04317664 - Intervention to Improve Driving Practices Among High-Risk Teen Drivers Phase 3
Completed NCT05812599 - Understanding COVID-19 Testing Knowledge and Practices Among 2-1-1 Helpline Callers N/A
Completed NCT03221985 - ESM Pilot: Mobile Phones and Psychology N/A
Completed NCT02267265 - Pilot Study of Novel Postpartum Educational Video Intervention N/A
Completed NCT03203018 - Health Literacy and Cardiovascular Knowledge Workshop in Women From Disadvantaged Communities N/A
Completed NCT02695316 - Barrier-free Communication in Maternity Care of Allophone Migrants N/A
Completed NCT02619474 - The Effect of Whiteboards on Patient Satisfaction N/A
Completed NCT01933789 - Improving Communication About Serious Illness N/A
Completed NCT01697137 - Patient and Physician Intervention to Increase Organ Donation N/A
Completed NCT01459744 - An Intervention to Improve Implantable Cardioverter-Defibrillator Deactivation Conversations N/A
Recruiting NCT01170000 - Timely End-of-Life Communication to Parents of Children With Brain Tumors N/A
Completed NCT01040975 - Teen CHAT: Improving Physician Communication With Adolescents About Healthy Weight N/A
Completed NCT03044145 - The Cultural Formulation Interview-Engagement Aid N/A
Recruiting NCT04533126 - Channels of Communication & Brain Functioning: Pilot fMRI Study
Withdrawn NCT03901547 - Emotion Regulation and Burnout Impact on Communication Documentation N/A
Completed NCT06081660 - Advance Care Planning for Older Latinos With Chronic Illness N/A