Chronic Kidney Disease Stage 5 Clinical Trial
Official title:
Assessing Perceived Versus Actual Knowledge and Quality of Life in Pre-Dialysis CKD Patients
Aims: The investigators' primary objective is to assess both perceived and actual disease
knowledge in local pre-dialysis Chronic Kidney Disease (CKD) patients. The investigators
hypothesize that actual disease knowledge is poorer than perceived. As the secondary
objectives, the investigators will also assess the HRQoL and examine the association between
level of knowledge and HRQoL in pre-dialysis CKD patients. The investigators hypothesize
that HRQoL of pre-dialysis CKD patients is poorer than that of the general population while
pre-dialysis CKD patients with greater disease knowledge have a better HRQoL than those with
poorer knowledge.
Methodology: A survey was developed to assess both perceived and actual knowledge on five
aspects - general knowledge, nephrotoxic medications, diet restrictions, symptoms of CKD and
its complications and renal replacement therapy (RRT) options. For the assessment of HRQoL,
the following questionnaires will be used - Kidney Disease Quality of Life-Short Form
(KDQOL-SF) version 1.3, EuroQoL 5 Dimensions (EQ-5D), Family Functioning Measure (FFM), and
Oslo-3 Social Support Scale (OSS-3). All study questionnaires will be provided in 3 main
languages - English, Chinese and Malay. A standardized data collection form was developed to
retrospectively collect demographic and clinical information from the patients' electronic
medical records and patient charts. Descriptive statistics will be used to report all
results.
n/a
Time Perspective: Cross-Sectional
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