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Clinical Trial Summary

Research project in which biological material is sampled and health-related personal data is further used and collected. Coded data are used.


Clinical Trial Description

The investigators wish to collect high quality prospective data on a rare disease in order to elucidate epidemiology, natural history, response to treatment and outcome. In addition, a biobank allows addressing specific scientific issues on a variety of open questions. The cohort will provide a platform for carrying out scientific research projects on PSC. In addition, the cohort will allow collaborations with reference networks on PSC abroad ;


Study Design


Related Conditions & MeSH terms


NCT number NCT03146936
Study type Observational [Patient Registry]
Source Fondazione Epatocentro Ticino
Contact Benedetta Terziroli Beretta-Piccoli, MD
Phone +41919608503
Email benedetta.terziroli@hin.ch
Status Recruiting
Phase
Start date February 28, 2017
Completion date December 31, 2022

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