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Clinical Trial Summary

The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.


Clinical Trial Description

n/a


Study Design


Related Conditions & MeSH terms


NCT number NCT05902351
Study type Observational
Source Hereditary Neuropathy Foundation
Contact Allison Moore
Phone 212-722-8396
Email allison@hnf-cure.org
Status Recruiting
Phase
Start date November 1, 2013
Completion date December 31, 2029

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