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Natural History Study in Pediatric Patients With MYBPC3 Mutation-associated Cardiomyopathy — MyCLIMB  

Cardiomyopathy Clinical Trial

Official title:
A Prospective and Retrospective Registry and Biomarker Study to Evaluate the Natural History of Pediatric Patients With Cardiomyopathy Due to MYBPC3 Mutations

Clinical Trial Summary

The objective of this study is to collect information on patients with cardiomyopathy (CM) due to mutations in the MYBPC3 gene, to evaluate their disease course, burden of illness, risk factors for this disease, and the quality of life (QoL). This study will also collect information on treatments, procedures and outcome in infants and children up to 18 yrs who have this mutation.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05112237
Study type Observational
Source Tenaya Therapeutics
Contact Laura Robertson, MD
Phone 650-416-1186
Email lrobertson@tenayathera.com
Status Recruiting
Phase
Start date November 1, 2021
Completion date June 2028
View Details
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