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Blue Rubber Bleb Nevus Syndrome clinical trials

View clinical trials related to Blue Rubber Bleb Nevus Syndrome.

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NCT ID: NCT03767660 Recruiting - Venous Malformation Clinical Trials

Efficacy of Rapamycin (Sirolimus) in the Treatment of BRBNS, Hereditary or Sporadic Venous Malformation

Start date: July 31, 2018
Phase: Phase 4
Study type: Interventional

A prospective, nonrandomized, open-label, single-arm clinical trial to study efficacy of rapamycin (sirolimus) in the treatment of Blue Rubber Bleb Nevus Syndrome, hereditary or sporadic venous malformation

NCT ID: NCT02399527 Recruiting - Clinical trials for Lymphatic Malformation

Lymphatic Anomalies Registry for the Assessment of Outcome Data

Start date: June 2013
Phase:
Study type: Observational [Patient Registry]

Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.