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Clinical Trial Summary

The study quantitates behavioral challenges in mucopolysaccharidosis type I-III and parental coping strategies


Clinical Trial Description

This is a prospective, cross-sectional, observational study quantitatively assessing

1. challenging behavior in children with MPS, an orphan, progressive, neurodegenerative metabolic disorder, and

2. parental coping strategies for this challenging behavior.

Patients registered at the German Society for Mucopolysacchardoses giving written informed consent are eligible. The study is based on questionnaires. IRB approval was obtained. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT03161171
Study type Observational
Source University Hospital Heidelberg
Contact
Status Completed
Phase N/A
Start date July 6, 2017
Completion date November 13, 2017

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