Developmental Disabilities Clinical Trial
Official title:
Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
Developmental disability is a severe chronic disabled condition caused by mental or physical
impairments. Children with developmental disabilities may face life-long difficulties in
motor functioning, self-care, condition, communication, and independent living. They often
receive rehabilitation services to promote daily functions and participation in home, school,
and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation.
Therapists encourage children with developmental disabilities and their parents to
participate in decision making and implementing process of intervention, and provide
intervention plan that best fit their family needs. Research shows that for children with
developmental disabilities, family-centered services can enhance children's development,
decrease parenting stress, promote emotional wellness, and increase parental satisfaction to
services. Though the "family-centered" concept has been considered as relevant in pediatric
rehabilitation, there are still difficulties, as well as a lack of evidence regarding its
implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health
insurance in Taiwan for early intervention outpatient care will emphasize on family-centered
intervention. The range of benefits may include communication with parents, parental
education, consultation and instructions for home programs. Besides, outcomes of
family-centered intervention will be treated as an important index for monitoring the quality
of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric
rehabilitation, the purposes of this one-year research project are to investigate the
implementation of family-centered pediatric rehabilitation for children with developmental
disabilities and to identify related influencing factors. This study will provide empirical
evidence for family-centered services in Taiwan.
n/a
Status | Clinical Trial | Phase | |
---|---|---|---|
Completed |
NCT01274065 -
Developing an Interdisciplinary Pharmacogenomic Treatment Approach to Reduce Medication Burden and Improve Outcomes
|
Phase 4 | |
Completed |
NCT01204151 -
Teaching Math Skills to Individuals With Fragile X Syndrome
|
N/A | |
Not yet recruiting |
NCT00531648 -
Relationships Between Toddlers With Feeding Disorder and SPD and Their Parents
|
N/A | |
Completed |
NCT00106652 -
Childhood Autism Risks From Genetics and the Environment (The CHARGE Study)
|
N/A | |
Not yet recruiting |
NCT06458959 -
Exploratory Trial of a Pediatric Web-Based Care Planning Guide
|
N/A | |
Completed |
NCT02090946 -
The Experiences of Parents Learning Physiotherapy Techniques for Their Child
|
N/A | |
Completed |
NCT02714868 -
Evaluation of Project TEAM (Teens Making Environmental and Activity Modifications)
|
N/A | |
Completed |
NCT01469117 -
Feeding Trial in Pediatric Patients
|
N/A | |
Enrolling by invitation |
NCT02745990 -
Recombinant Human Erythropoietin Improve Neurodevelopmental Outcomes in Extremely Preterm Infants
|
N/A | |
Completed |
NCT00465361 -
Resident Surveillance of Pediatric Patient Developmental Status at the Two Month Preventive Care Visit
|
N/A | |
Completed |
NCT03447119 -
Living Well With a Disability Curriculum Adaptation Evaluation Plan
|
N/A | |
Completed |
NCT02561754 -
Weight Management for Adolescents With IDD
|
N/A | |
Active, not recruiting |
NCT00110292 -
Preventing Learning Problems in Young Children: A Public Health and Physician-Based Outreach
|
Phase 1 | |
Completed |
NCT00723151 -
Effects of Intensity of Early Communication Intervention
|
Phase 2 | |
Completed |
NCT02912065 -
Tube Feeding Tolerance After Switch to Peptide Based Formula in Children With Developmental Delay
|
N/A | |
Recruiting |
NCT02686931 -
The Investigation of Children With Developmental Delay and Children's Rehabilitation Common Case
|
N/A | |
Completed |
NCT02329509 -
Evaluation of Facial Growth in Two Primary Protocols Used in the Surgical Treatment of Unilateral Cleft Lip and Palate Patients
|
N/A | |
Completed |
NCT00161135 -
Magnetic Resonance Imaging in Children and Adolescents With Autism and Multiple Complex Developmental Disorders
|
N/A | |
Recruiting |
NCT02082535 -
S100B as a Marker of Brain Injury of Preterm Infants
|
N/A | |
Completed |
NCT01882153 -
Evaluating Parent Delivered Interventions for Children With Autism
|
N/A |