Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

Autistic Disorder Clinical Trial

— HaSPrEA  

Official title:

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care: Qualitative Study - Monocentric Study

Clinical Trial Details — Status: Completed

Administrative data

• NCT number: NCT04820998
• Other study ID #: 20CH029
• Status: Completed
• Start date: September 1, 2021
• Est. completion date: January 1, 2023

Study information

• Verified date: July 2023
• Source: Centre Hospitalier Universitaire de Saint Etienne
• Contact: n/a
• Is FDA regulated: No
• Study type: Observational

Clinical Trial Summary

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Description:

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account. A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat. The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Recruitment information / eligibility

• Status: Completed
• Enrollment: 45
• Est. completion date: January 1, 2023
• Est. primary completion date: April 1, 2022
• Accepts healthy volunteers: No
• Gender: All
• Age group: N/A to 18 Years

Eligibility

Inclusion Criteria:

• Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK),
• Children followed for Autism Spectrum Disorders (ASD),
• Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion Criteria:

• Opinion of the child's referring physician contraindicating inclusion
• Refusal of one of the legal guardians to participate in the study

Related Conditions & MeSH terms

• Autistic Disorder

Intervention

Other:
• Families
Families's interviews about their precarious situation of living and the consequences on their autistic child care
• professionals
Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Locations

Country	Name	City	State
France	Chu St Etienne	Saint-Étienne

Sponsors (1)

Lead Sponsor	Collaborator
Centre Hospitalier Universitaire de Saint Etienne

Country where clinical trial is conducted

France, 

Outcome

Type	Measure	Description	Time frame	Safety issue
Other	Professionals	Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals	hours 2
Primary	living conditions of children with Autism Spectrum Disorders (ASD)	To identify the living conditions related to the housing of children with Autism Spectrum Disorders (ASD) who are cared for at the Léo Kanner Center (CLK), psychopathology department of the University Hospital of Saint-Etienne.	hours 2
Secondary	Precarity	Families's interviews about their precarious situation of living and the consequences on their autistic child care	hours 2