All Clinical Trial
Official title:
Research Contact Registry for Members of the Amish and Mennonite Communities
NCT number | NCT02990572 |
Other study ID # | PRO16030311 |
Secondary ID | |
Status | Recruiting |
Phase | |
First received | |
Last updated | |
Start date | October 2016 |
Est. completion date | December 2030 |
The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.
Status | Recruiting |
Enrollment | 1000 |
Est. completion date | December 2030 |
Est. primary completion date | December 2026 |
Accepts healthy volunteers | Accepts Healthy Volunteers |
Gender | All |
Age group | N/A and older |
Eligibility | Inclusion Criteria: - Amish and Mennonite men and women age 18 or older - Amish and Mennonite children with the permission of a parent Exclusion Criteria: - Amish and Mennonite men and woman age 18 or older who do not speak English - Those who are not Amish or Mennonite |
Country | Name | City | State |
---|---|---|---|
United States | Children's Hospital of Pittsburgh | Pittsburgh | Pennsylvania |
Lead Sponsor | Collaborator |
---|---|
University of Pittsburgh |
United States,
Type | Measure | Description | Time frame | Safety issue |
---|---|---|---|---|
Primary | Accumulation and clinical definition of a patient population who are willing to participate in future research studies for which they are eligible. | This research registry is intended to allow for identification of patients from the Plain Communities who are willing to participate in medical research. Eligibility for each future study will likely cary and patients will be selected and contacted with their permission, by dint of having consented to this registry, about the option of participating in a new research study. | This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained up to 14 years. |
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