Advanced Cancer Clinical Trial
Official title:
The Exceptional Patient in Cancer Care
The objectives of this study is to conduct a multicenter, dual country (United States and
Israel), study examining the experience of patients with cancer that were considered by
their physicians as having exceptional course of survival related to their specific disease
state.
The primary aim of the study is to develop a detailed description of patients' experience of
an exceptional disease course. The secondary aim is to define the content domain for
assessment and measurement of exceptional disease course in patients with cancer and
identify lessons learned from these exceptional patients that can be a base for future
studies to benefit others.
The investigators of this study are exploring the experience of people with cancer who are
considered by their physicians as having an exceptional course of disease - people who have
defied the odds and remain well despite the severity of the original diagnosis.
Participation in this study is completely voluntary. Lessons learned from recorded
experience(s) may be helpful to other patients and can be a basis for future studies that
may benefit other patients.
To participate in this important study is simple and not time consuming. You will have only
one face-to-face or telephone interview with a research assistant. During the interview you
will simply be asked to describe your perspective, thoughts, and behaviors that you think
are related to your disease course and lessons that you think others may gain benefit from.
The interview will last about one hour and will be conducted at a time that is convenient
for you.
If you agree to participate a research assistant will schedule a time for a recorded
interview by phone or if possible at a location convenient to you. The interviews will be
taped and transcribed. All recorded interviews will be retained for a minimum of 6 years.
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Observational Model: Case-Only, Time Perspective: Prospective
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