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Clinical Trial Summary

Observational study of adult patients with spinal muscular atrophy types 2 and 3 receiving nusinersen


Clinical Trial Description

Observational study to assess effects of nusinersen on motor function in adult patients with spinal muscular atrophy who are both ambulatory and non-ambulatory. Subjects will receive standard of care with nusinersen intrathecal injection and undergo baseline and every 6 month motor assessments and pulmonary function testing during the first two years of treatment with nusinersen. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT03878030
Study type Observational
Source Northwell Health
Contact
Status Completed
Phase
Start date April 1, 2019
Completion date July 13, 2021