EXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)

Acute Hepatic Porphyria Clinical Trial

Official title:
A Natural History Study of Acute Hepatic Porphyria (AHP) Patients With Recurrent Attacks

Status Completed

Clinical Trial Summary

The purpose of this study is to characterize the natural history and clinical management of Acute Hepatic Porphyria (AHP) patients with recurring attacks.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT02240784
Study type	Observational
Source	Alnylam Pharmaceuticals
Contact
Status	Completed
Phase
Start date	August 2014
Completion date	April 26, 2021

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See also
Status	Clinical Trial	Phase
Completed	`NCT03338816` - ENVISION: A Study to Evaluate the Efficacy and Safety of Givosiran (ALN-AS1) in Patients With Acute Hepatic Porphyrias (AHP)	Phase 3
Terminated	`NCT03547297` - INSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHP
Not yet recruiting	`NCT04923516` - Prevalence of Acute Hepatic Porphyria
Recruiting	`NCT05344599` - Evaluating the Prevalence of Acute Hepatic Porphyria in Postural Tachycardia Syndrome
Recruiting	`NCT04883905` - ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Approved for marketing	`NCT04056481` - Expanded Access Protocol of Givosiran for Patients With Acute Hepatic Porphyria