Type1diabetes Clinical Trial
Official title:
Parents of Young Adults With Type 1 Diabetes: An Exploratory Study
The purpose of this mixed-methods study is to explore the lived experience of parents of young adults ages 18 to 25 years with type 1 diabetes who are transitioning to independence, and to test the preliminary efficacy of a mobile education program to reduce parental distress.
As young adults with T1D navigate the transition process to independence, they often do so in
partnership with their parents, who are tasked with providing support and guidance. At this
time, however, no structured education program exists for these parents. In addition, little
is known about their learning needs, levels of distress, and readiness to provide appropriate
guidance for their emerging adult children. This represents a gap in the literature and an
opportunity to undertake exploratory research to learn more about this population so that
meaningful education and support can be provided.
Aim 1. To describe the lived experience and diabetes-specific educational needs of parents of
young adults with type 1 diabetes who are transitioning to independence.
Aim 2. To measure the effect of a mobile diabetes education program on diabetes distress
levels of parents of young adults ages 18 to 25 years who are transitioning to independence.
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