PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension — PVRI GoDeep  

Pulmonary Hypertension Clinical Trial

Official title: PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Status Recruiting

Clinical Trial Summary

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

Clinical Trial Description

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center.

Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

The data provided by PVRI-GoDeep will support academia to perform scientific projects in the field of PH. Pharmaceutical / commercial companies will be charged fee for access to PVRI-GoDeep data and / or analysis, thereby creating revenues exclusively devoted to support the PVRI mission and the registries entering their data into PVRI-GoDeep. All requests from academia or commercial companies are to be decided by the PVRI-GoDeep consortium, serving as Use and Access Committee. ;

Related Conditions & MeSH terms

• Global Health
• Hypertension
• Hypertension, Pulmonary
• Pulmonary Hypertension

• NCT number: NCT05329714
• Study type: Observational
• Source: University of Giessen
• Contact: Raphael W Majeed
• Phone: +49 641 985 42502
• Email: raphael.majeed@innere.med.uni-giessen.de
• Status: Recruiting
• Start date: January 30, 2020
• Completion date: January 30, 2055