Hereditary Haemorrhagic Telangiectasia Clinical Trial
Official title:
A Questionnaire Based Study to Evaluate the Safety of Flying in Hereditary Haemorrhagic Telangiectasia (HHT)
Hereditary Haemorrhagic Telangiectasia (HHT) is a condition in which sufferers have abnormal
blood vessels which makes them more likely to bleed than other people, particularly in the
lungs, which results in low blood oxygen levels. Flying may make this worse and cause
problems. The investigators want to know if there are an increased number of problems on
flights compared to on land.
The investigators currently do not have any evidence based guidelines on air travel to best
advice people who suffer with HHT. The investigators would therefore like to ask individuals
who have HHT about their experience on a flight, using a postal questionnaire.
Individuals with Hereditary Haemorrhagic Telangiectasia (HHT) previously reviewed at HHTIC
London will be sent an invitation to participate in a short questionnaire study.
Quantitative variables from the questionnaires for statistical analysis will be the number
of individuals responding (and number of questionnaires sent out); number of flights taken
and number of complications, subgrouped by type, and flight duration in hours. Complication
rates will be expressed as proportion of person flight hours.
The quantitative data from the questionnaire will then be compared with quantitative data
from patients' medical records using non parametric methods such as Mann Whitney for
univariate analyses.
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Time Perspective: Retrospective
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